A Good Day

Today Mary had a good day! She was still up last night a little bit, she was still hurting and she was still a bit weak in the belly, but she got up and she went to school and she didn't take the wheelchair! She even had P.E. today and she played at recess!! :) I am one happy, happy Mommy today.



This afternoon, she got home from school and she was so excited because it's her best friend's birthday. She even invited her sister to go over to her friend's house with her (don't miss that, hold on to it for just a moment! lol She invited Clara to go with her!). I am always up for a special moment like that! They are not always so kind to each other. But here's the real kicker...Clara agreed to go, and she was even EXCITED about going with Mary! Of course that had to be kept forever by putting it here, lol.

I got two notices today from the Board of Education about Clara and Mary's absences. Clara's unexcused absences are just me having Mommy brain and forgetting to send in her doctor's notes, but Mary's are due to her pain and her not sleeping well. Here lately, she has been hurting a lot more and she's been vomiting and sick to her stomach. I'm going to be scheduling her a doctor's appointment in the morning to see if there's anything they can do. I usually avoid these appointments because the answer is normally "Give her ibuprofen, it's all we can do until she gets in to her Rheumatologist in April." Ugh. It can get very frustrating. So I wrote the Superintendent and the Principal and her teacher, (who has been absolutely amazing through all of this. We are so thankful for Mrs. McKneely and wish that Mary could take her to every grade from now until graduation!).

Mary has also been getting these little white bumps all over her face. I don't know what these are, and I doubt that her Pediatrician is going to know, but I will still be asking about them at her next appointment. I am terrified of them leading to that darn rash all over her face again. That rash is horrible and we just spend most of our time crying when we see her like that. But all we can do is wait it out.

(If anyone hasn't seen her YouTube video and isn't aware of what rash I'm speaking of, this is the one. This is the horrible, no good, having a very bad day rash. She doesn't even look like herself and these pictures are not even as bad as it has gotten.)

I am hoping for a good night tonight. Mary tossed and turned a bit last night, Kathryn had her normal night terrors and Aiden kept me up all night with a hurting belly. Even Clara was having a difficult time sleeping last night. It must've been something in the air. Who knows? But tonight, we will all be hoping for a restful night. This Mommy needs some real sleep. It doesn't seem like that comes very easily these days, for any of us.