So this morning, Johnnie and Mary had to be up extra early to make it to Atlanta by 8:10am for her first ever ENT appointment. I don't know if many will remember, but Mary failed her hearing test at her previous Pediatrician's office, six times! They were recommending that she be checked by an ENT to see if she would need a hearing aid. So we set up the appointment.
She went through all of the testing today and she has perfect hearing!! :) No problems at all. They said that a lot of the time, the PCPs just do not have the correct updated equipment and have less than par results, sending the kids to them only to find they have great hearing. Which is fine by me! I am ecstatic to finally have a positive answer to something. And I know Mary is. Although, I think she is disappointed that she won't be able to use that as an excuse for not listening to me anymore. :P
So today when they got home, we - Me, Mary and Jason(My brother) went for our walk around the block. We walk it twice so that we get a mile in the morning and then again in the evening. After that, we went swimming and enjoyed a few hours working out in the pool, laying out in the sun and just watching the girls have fun. Clara's still at camp, so it was different without her there. I think her sisters missed her being there, I know I did.
We came home, ate dinner and went to walk again. Only this time, we added some distance and a huge, unfriendly hill to the walk. When your lungs are hurting and your legs are on fire, you know you're getting in a great workout. :)
I have now gone from 289lbs to 265lbs! I'm good with that loss so far. It feels great!! :) And I'm still going. I'll be super hot this time next year. lol
I love that Mary is joining us now too. She walks with us, she gets exercise in the pool and she works out with me sometimes. It's good for her and for her JIA.
Unfortunately, she is losing more and more motor function of her right hand everyday. It's really hard to type that. The emotional distress for me is overwhelming, I can't imagine what is going on inside of her head. When she stops to think about it and tries to talk about it, she breaks down in tears and needs me to hold her. She's scared to death and I don't blame her one bit..I am too. I cannot even begin to explain to you the horrible, terrible fear that comes over me as her mother when I try to imagine her future and the limitations that she will face. She's right handed. this arthritis is robbing her of a lot, now and in her future. I just wish there was a cure.
Anyway, here are some photos of our day at the pool. We had a blast. :)
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