We started the day scrambling to get everyone up and ready to get out the door in just 15 minutes. I haven't been sleeping well, my sleep is interrupted time and time again all night long, so I am averaging about 3.5-4 hours of sleep a night, interrupted. So when the alarm went off at 6am, I reset it for 6:15am. Which normally wouldn't be a big deal, but this morning, we had to all be up, dressed, fed and out the door by 6:30am. It didn't quite work out that way. I was up, hollering through the house for everyone to wake up, while pulling my clothes on and pulling breakfast biscuits out of the fridge...reading directions to cook them and making sure everyone was getting up, while brushing my hair, hollering some more cause no one was responding, hopping over to my flip flops, and then putting biscuit after biscuit in the microwave. Then I headed out to warm up the car. Thank goodness I made our on the go lunches last night.
We managed to have everyone up by 6:25am, although grouchy and ill cause they were hollered awake, but they were up and getting ready anyway. Kat was crying and having a mental breakdown because she didn't want to be up and then because she wanted a biscuit too (She eats breakfast at school).
So I get everyone out the door. Aiden's cup, diapers, rash cream, blankie, etc all ready to go and we are all splitting up going in two different directions, half of us are moving toward the car, and half of us are going up the hill to take Kat to the bus stop. I had to turn around and have Clara take Kat up cause I forgot something. I had to ask our neighbor, Melissa, to get Kat on the bus for me because we were about 20 minutes behind for a long, chaotic ride on I-285. (Ewwww, Spaghetti Junction)
We got about halfway to the exit of our neighborhood and I remembered our lunch that was left sitting on the kitchen table. Ugh...we had to turn around. We pulled back in the driveway just in time to see Kat getting on the school bus. SMH
So we finally get to I-285 just to reach stop and go, bumper to bumper traffic for the ENTIRE ride to Scottish Rite...we were 10 minutes late.
We had Clara's ENT appointment first. We signed in and they shoved her into a giant metal, sound proofed box and clamped plugs onto her ears. We sat there for 30 minutes as Clara repeated words spoken to her and as she pushed a button to tell when she heard a beep. Then she was given two different computerized hearing tests. Her tests said she barely passed, which as they explained means she failed. o.O
Her hearing is below average in both ears. This is her 4th test, third one failed. First one failed for both ears. So they scheduled a follow-up test for one month from now. Because of the sporadic ringing in her ears and the dizziness, with the hearing loss fluctuation, they believe she has Meniere's Disease like Mom and Johnnie.
Meniere's disease is a horrible, crippling disease to have as an adult. To have it at 12 years old is kinda (a lot) crappy. Van Gogh had Meniere's and they believe that may be what drove him crazy and led to him cutting off his ear. So they are thinking that on the next ENT appointment, they will be fitting her for hearing aids for both ears. :(
After the ENT appointment, we had 2 hours until Mary's appointment across the street. So I took Clara upstairs to her Craniofacial Clinic to see her Orthodontist about the appliance in her mouth. The appliance had been in for a long time and it was starting to hurt her cheek. So Dr. Granger took it out and took a mold of her mouth to make her a retainer. She is thrilled! The first thing she said was "Gum!" "Taffy!" LOL
We managed to have everyone up by 6:25am, although grouchy and ill cause they were hollered awake, but they were up and getting ready anyway. Kat was crying and having a mental breakdown because she didn't want to be up and then because she wanted a biscuit too (She eats breakfast at school).
So I get everyone out the door. Aiden's cup, diapers, rash cream, blankie, etc all ready to go and we are all splitting up going in two different directions, half of us are moving toward the car, and half of us are going up the hill to take Kat to the bus stop. I had to turn around and have Clara take Kat up cause I forgot something. I had to ask our neighbor, Melissa, to get Kat on the bus for me because we were about 20 minutes behind for a long, chaotic ride on I-285. (Ewwww, Spaghetti Junction)
We got about halfway to the exit of our neighborhood and I remembered our lunch that was left sitting on the kitchen table. Ugh...we had to turn around. We pulled back in the driveway just in time to see Kat getting on the school bus. SMH
So we finally get to I-285 just to reach stop and go, bumper to bumper traffic for the ENTIRE ride to Scottish Rite...we were 10 minutes late.
We had Clara's ENT appointment first. We signed in and they shoved her into a giant metal, sound proofed box and clamped plugs onto her ears. We sat there for 30 minutes as Clara repeated words spoken to her and as she pushed a button to tell when she heard a beep. Then she was given two different computerized hearing tests. Her tests said she barely passed, which as they explained means she failed. o.O
Her hearing is below average in both ears. This is her 4th test, third one failed. First one failed for both ears. So they scheduled a follow-up test for one month from now. Because of the sporadic ringing in her ears and the dizziness, with the hearing loss fluctuation, they believe she has Meniere's Disease like Mom and Johnnie.
Meniere's disease is a horrible, crippling disease to have as an adult. To have it at 12 years old is kinda (a lot) crappy. Van Gogh had Meniere's and they believe that may be what drove him crazy and led to him cutting off his ear. So they are thinking that on the next ENT appointment, they will be fitting her for hearing aids for both ears. :(
After the ENT appointment, we had 2 hours until Mary's appointment across the street. So I took Clara upstairs to her Craniofacial Clinic to see her Orthodontist about the appliance in her mouth. The appliance had been in for a long time and it was starting to hurt her cheek. So Dr. Granger took it out and took a mold of her mouth to make her a retainer. She is thrilled! The first thing she said was "Gum!" "Taffy!" LOL
Marian had an appointment with Dr. Pollard, her eye doctor. She had some trouble with her left eye recently and because of the JA being tied to some kids going blind, her Pediatrician made the appointment for Mary. Dr. Pollard did the exam and gave her a clean bill of health for her eyeballs. ;)
He also told us that most of the JA kids who have multiple joints affected usually do not have the eye problems that those with only one or two joints affected have. That was a relief to hear. Of course he says it's medicine, nothing is 100%, but he's betting she will be ok.
He also told us that most of the JA kids who have multiple joints affected usually do not have the eye problems that those with only one or two joints affected have. That was a relief to hear. Of course he says it's medicine, nothing is 100%, but he's betting she will be ok.
After Mary's eye appointment, we headed home. We were there for a few minutes before me and Clara headed back out to CHOA (Hudson Bridge) for x-rays of her spine. Her back has been hurting again recently, so we needed updated films. Sure enough, she has had a 5 degree progression in the top of her spine. Her curvature is at a 13 where it had only been at an eight, 6 months ago. The bottom curvature is a 9.
Mary's curvature is a 10 at the top and a 15 at the bottom.
Crazy isn't it? Both girls have scoliosis. That has got to be some serious Momma-karma coming back on my babies. What are the odds of both of them having it? I mean really..
So now Mary has Scoliosis clinic coming up next week I believe, and we are waiting to hear from them to schedule Clara's clinic date with them. SMH *sigh*
Mary's curvature is a 10 at the top and a 15 at the bottom.
Crazy isn't it? Both girls have scoliosis. That has got to be some serious Momma-karma coming back on my babies. What are the odds of both of them having it? I mean really..
So now Mary has Scoliosis clinic coming up next week I believe, and we are waiting to hear from them to schedule Clara's clinic date with them. SMH *sigh*
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