A Long Day

We started off the day with yet another doctor's appointment. At least this time it was closer to home. We had to go into their Pediatrician's office for all 3 girls. Late last night, Mary came in complaining of a rash in her palate. She said it was bumpy and irritating. I looked and saw a yellowish discoloration. So I took her with us to their appointment and asked for her to be seen too, which they allowed. But only after I had to call our insurance and have them change the address to their office, because they had us listed under a completely different doctor.

So Dr. Barnwell came in and took a look at Mary's mouth, they did a strep swab that came back negative, so he said it must be viral. I'm wondering if it has anything to do with her JIA?

He took the paperwork for Kathryn that Johnnie and I had filled out 3 weeks ago, along with the paperwork from her teachers, and told me that we definitely need to follow up with the specialist, so I got his number-again, cause I lost it before, and will be scheduling that appointment in the morning. He also added Melatonin to her medication. We picked it up today along with a refill of her Clonidine.

He did an ANA blood work panel on Clara and referred us out to Dr. Vega-Fernandez. He thinks it's definitely JIA. :/ Her shoulders and her knees are hurting her so bad. She can barely brush against anything with her shoulders and she's in pain.

This is crazy nuts! Why is JIA running rampant within our family all of a sudden?

So now they all 3 have to see the psychologist, all for different reasons. Kat for her ADHD and anxiety, Clara for her social anxiety and Mary for her JIA. This should be fun.

She has still been waking up with night terrors. Even with the Melatonin added to her medicine. I don't know how to stop this. He asked me today if she had experienced any bad emotional traumas. I have my suspicions. I know she won't ever leave my sight again, with the exception of school.

(Sleeping so beautifully and peacefully, you'd never even know she was in a full on night terror just a few minutes earlier.)

She actually allowed me to touch her tonight during one of her outbursts, (She's doing it off and on tonight already). I held her hand and rubbed her shoulder. It may sound like nothing, but it's major for me. I am not normally allowed to make contact with her at all during her outbursts, until she has calmed down quite a bit. I am really hoping this is a sign of progress.

Another of Kat's Night Terrors